At times it's not good to look too far down the road.
It's great to have dreams but sometimes fate intervenes!
Those of you who kindly follow me on Twitter will already be aware that the last couple of years have been somewhat of a challenge for my family.
This has motivated me to re evaluate my thinking and to make changes where I can.
'Things' are now to take second place to people.
It was an ordinary night.
'Really?' I hear you say!
'Surely not?'
Well, the fact that here they've taken to calling me 'Pollyanna' may just go some way to confirming this theory a wee bit!!
It's actually been easier this way when the illness is invisible, and you apparently don't look sick.
'Things' are now to take second place to people.
Truthfully this will be partially out of necessity.
The family finances have already taken a battering, and now I have to consider that I may be unable to return to work.
You see, last year something happened during the night!
The family finances have already taken a battering, and now I have to consider that I may be unable to return to work.
You see, last year something happened during the night!
It was an ordinary night.
So ordinary that I actually cannot recall anything of it.
But when I woke up I had changed.
Everything had changed.
My body didn't seem to work.
I could barely move.
But when I woke up I had changed.
Everything had changed.
My body didn't seem to work.
I could barely move.
Everything hurt so much that I wondered if this is what it felt like to have a stroke!
Or perhaps I was on my way to that 'heaven' place .. you know, the one that I actually don't believe in?
I won't go into all that happened that day, I'm not ready to look back at it just yet.
Enough to say that it was the beginning of a journey!
How I hate that 'journey' word!
This was not something I'd planned, or signed up for.
Enough to say that it was the beginning of a journey!
This was not something I'd planned, or signed up for.
I didn't even have a ticket.
None of us were prepared.
None of us were prepared.
I'd not packed.
And the laundry was still in the washing basket!
Anyone who knows me will tell you that I would never, ever go on a journey and leave laundry in the washing basket!!!
But it seemed I was off on a 'journey' whether I liked it or not!
You see, I have a chronic autoimmune disease, and it's serious.
You see, I have a chronic autoimmune disease, and it's serious.
There, I've said it!
I think that, until now, I may just have been somewhat in denial, not really ready to accept the reality of it all!
I think that, until now, I may just have been somewhat in denial, not really ready to accept the reality of it all!
'Really?' I hear you say!
'Surely not?'
Well, the fact that here they've taken to calling me 'Pollyanna' may just go some way to confirming this theory a wee bit!!
It reduces the anxiety of others, especially as I am not responding well to the miraculous, very expensive but toxic, chemo-type drugs that I've had to wait for months to be eligible for!
They make me sick, dizzy, freezing cold, my hair is falling out and my weight has plummeted.
And then there's the pain!
It's dragging me away from everything I was.
It distorts my time.
It's stealing my independence and my dreams.
It saps my energy.
It's so isolating.
It's destroying my self image, and my confidence.
Its scary, like fighting dragons without a sword and in the dark!
So I'm going to try and take back some control of this unplanned 'journey'
So for now it's Mindfulness,
They make me sick, dizzy, freezing cold, my hair is falling out and my weight has plummeted.
But the hoped for positive stuff just isn't happening!
'But why are they not working for you?' they say!
'I really thought that you'd be better by now.'
And 'I wonder why it's taking so long' .... followed by a silence that seems to suggest that it's my fault the drugs aren't working!
'But why are they not working for you?' they say!
'I really thought that you'd be better by now.'
And 'I wonder why it's taking so long' .... followed by a silence that seems to suggest that it's my fault the drugs aren't working!
And then there's the pain!
It comes in waves, and it feckin hurts!
It's been said in the past, by my dentist, that I have a high pain threshold!
It's been said in the past, by my dentist, that I have a high pain threshold!
But the onslaught of this pain takes over everything!
It's dragging me away from everything I was.
It distorts my time.
It's stealing my independence and my dreams.
It saps my energy.
It's so isolating.
It's destroying my self image, and my confidence.
Its scary, like fighting dragons without a sword and in the dark!
It frightens me...the fear of what may lie ahead, what may happen.
And even worse, I can't wear high heels or dance, .. yes, I really am that shallow!
And even worse, I can't wear high heels or dance, .. yes, I really am that shallow!
So I'm going to try and take back some control of this unplanned 'journey'
I can't do anything about the pain, but I have to do something!
After all, doing something, anything, has to be better than doing nothing.
In real life I am a C.P. Social Worker and a student counsellor, so I've always been able to 'talk the talk.'
Now it's time for me to put some positive energy out there, and, albeit in flat shoes, start to 'walk the walk!'
In real life I am a C.P. Social Worker and a student counsellor, so I've always been able to 'talk the talk.'
Now it's time for me to put some positive energy out there, and, albeit in flat shoes, start to 'walk the walk!'
Gratitude,
Live in the moment, and
Cherish the good stuff.
All phrases I know so well. How hard can it be?
Small bite sizes pieces.
Do a wee bit more than just going through the motions.
Commit to only a month initially.
Be selfish, go with your goosebumps!
And if necessary .. and this is the real biggy .. if necessary, just fake it until you make it!
I have used the theories in professional practice successfully for years.
Now it's 'put up or shut up' time!
'Physician, heal thyself.' Right?
So, today I'm taking a leap into the darkness.
I'm doing it my way, choosing my own path.
And, just for now, I'll hold on tight to my dreams, put on my big girls boots, (sadly, the flat ones)
and try hard to appreciate the moment...dragons and all!